Tag Archives: Bone marrow

Standing By, Like A Boss


 

After a long morning of calling, being told I would receive a call back shortly, waiting, calling back, being told the person who was to call me was on break, waiting, calling back, being told someone would get back to me, waiting, calling, person who was to call me is on another break, waiting.

I received a call from the hospital.

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Another Week of Waiting


Sometime Tuesday or Wednesday of this week, the ATGAM medication had been approved, meaning that I’ll be admitted very soon to the hospital.  I’m assuming I’m waiting for a bed to be opened for me at the hospital, although, the communication from my hematologist‘s office is still leaving something to be desired.

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Frustrating Friday


A little frustrated this morning after a full week of not hearing anything from my hematologist about when I might be going in.  Although I got a blood transfusion on Wednesday to get me over the hump, we were hoping to get some word about what the delay or hold up is.

Communication is vital to me, and right now the lack of communication between my hematologist and me is lacking.

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More Blood


 

After being told that I would be admitted at the beginning of this week for the ATGAM treatment, the medication has still not arrived.  The ATGAM medication is not something that is readily available, so that is what I’m guessing the delay is.  In the meantime, since my counts are getting lower and lower, my hematologist decided to do a band aid treatment of giving me two more units of blood this morning.

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The Word Has Come Down – Treatment Ahoy



I go for blood tests once a week to see how my blood counts are doing, and yesterday was not a good result.  My platelet level, which help the blood clot, was at 8 (normal person 25-30), and this is the lowest level they have ever been.  I saw my Hematologist today, and we have decided on treatment due to my bone marrow failing, and the aplastic anemia gaining the upper hand.

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